This coming Wednesday I’m getting a new hip! I know…you’re probably saying, “She’s way too young for hip replacement.” That’s how I feel too. But the x-rays, a limp in my stride and increasing discomfort and fatigue that keep me from living the life I want, tell a different story.
My hip is dis-eased! It isn’t a happy hip anymore. It complains when I get up from sitting down and when I walk more than a few hundred feet. Sometimes it even grumbles just walking from the car into the house. I have moments of freedom and ease when I think, “Maybe I really don’t need a new hip.” But then I find myself limping again.
The combination of a hip supportive yoga routine along with physical therapy have kept my hip relatively happy over the past 3 years since arthritis was first diagnosed. I worked with my hip to keep it mobile and strong. I applied the principles I teach others. I listened to my hip. I eliminated activities that exacerbated the discomfort and found softer, gentler ways of exercising. I exchanged my road bike and long distance cycling for a more recreational style of riding. Swimming became my go-to cardio. I devoted anywhere from 20 to 40 minutes a day just doing my yoga and PT exercises. But, disease can’t always be cured. Some disease can only be managed and delayed.
Like breast cancer at 30 and my shoulder reconstruction at 50, hip replacement is another teacher on my path of being alive and well. What’s different this time is I’m choosing surgery. I’m choosing to do it sooner than later. I didn’t have that choice with cancer or my dislocated shoulder.
Learning to live with disease is an essential life skill that we don’t learn except through experience. We don’t always get to choose the treatment, but we can make significant choices about many other aspects of how we respond.
What dis-ease are you dealing with today?
What do you do to manage and work with the dis-ease that doesn’t seem like it may ever be cured? That you may just have to find a way to live with as best as you can?
My life’s work is to help myself and others love and enjoy living in our bodies, just as we are and make life-giving choices as we adjust to the changes and dis-eases that are an expected part of life.
I didn’t want cancer. I didn’t want a dislocated shoulder. I don’t want osteoarthritis in my hip and low-back. But once they became part of my story I made choices to let them become my teachers. All of the wisdom, guidance and compassionate support I offer others grows out of my daily choice to move toward dis-ease of body, mind, heart and spirit with compassion, openness and curiosity.
If you’ve got some dis-ease you’re dealing with and want support for your journey, please consider joining me and my companions at Alive and Well Women for our upcoming program: Alive and Well – A Contemplative Path to Health and Well-being.
Some of you participated in previous versions of the Alive and Well program. I’d love to have you re-join me for this revised version. The journey begins with an “in-town” retreat on Friday, March 31 from 6:30 – 9:00 p.m. and Saturday, April 1st from 9:30 a.m. – 5:00 p.m. followed by weekly gatherings on Thursdays from 7:00 – 8:30 p.m. during April (6, 13, 20, 27).
Alive and Well is also offering Awaken: Self-Care from the Inside Out on Saturday, March 18th. The day includes experiential teaching and practices designed to help you connect to and work with your body to discover your unique blueprint for self-care.
Both events take place in Pasadena area. I’d love to see you at one or both.
In the meantime, your prayers for a smooth and successful surgery on Wednesday, February 22nd and a solid recovery after would be much appreciated.
Health, wellness, death and disease are on my mind. The new year launched, along with the usual “New Year – New You” promotions for diets, fitness programs, products and services being sold in the name of health and wellness.
As I watch January unfold, along with social media posts of friends expressing delight with the 5.2 pounds they lost in one week working out with a new trainer or the increased energy they feel on the detox they started after the holidays, I have mixed feelings. I want my friends to be well. I want them to be in alignment with their bodies, to feel good and have optimal energy. And, I’ve seen and heard too many heartbreaking stories of people who’ve lived on the diet, fitness and wellness roller coasters, bouncing from one program to another, gaining and losing weight over and over again, looking for the answer to whatever health challenge they experience.
As I prayed about how to respond, about how to support and about how I hoped that this time it might really stick, I heard the voice of God’s love reminding me to take an eternal perspective on all these things. And, to remember that while health and wellness is important, in the long run, disease and death can’t be outrun.
I faced cancer at 30, had major shoulder surgery at 50 and am likely to have my left hip replaced this year as I hit 55. I’ve exercised regularly since junior high school, eaten lots of vegetables my entire life and don’t smoke, drink or take drugs. Disease happens anyway!
As I prayed, I got a download from the Spirit. As I went back to read it again, I felt inspired to share it here. For me, this is the Voice of Love reminding me that, as Julian of Norwich proclaimed, it is in the midst of suffering that we most need to experience that, held in God’s love, all will indeed be well.
All you have is today. You could die today. Don’t fear death. Death is not the enemy. Don’t fear disease. Disease is not the enemy. Each day’s sufferings are enough for the day. Don’t add to your burden by projecting into the future or clinging to the past. Today, this day, this moment, is all you have. Show up. Be present. Do your best. Let go of results.
Don’t fear your body. The great lie of health and wellness is that we can overcome and conquer the weakness of the body, bypass aging and never have to grow old or die. The truth is, time isn’t something to be managed, pain isn’t just weakness leaving the body and the value of external remedies and practices is limited. Health…wellness…isn’t the absence of disease but our capacity to live in harmony with ourselves and all living beings amidst the physical, mental emotional and relational disruptions that are part of life. There’s nothing to conquer, overcome, manage or fix! Our work is to be present with what is, listen to our aliveness and let decisions arise from the depths of our Inner Beings where Wisdom dwells.
A recent blog post from the Breast Cancer Action (BCA is a nonprofit advocacy group for health justice for women at risk of or living with breast cancer) reminded me why I don’t buy pink. All the hype about “Think Pink” during October’s breast cancer awareness push is as much to benefit companies using the slogan as it is to increase awareness. Some companies claim to care about breast breast cancer yet produce, manufacture or sell products with chemicals linked to the disease. And some department stores, clothing and accessory manufactures and other companies that sell pink products donate only a small percentage of the profits to the effort. That’s why I don’t buy pink anymore. Although I once did.
This Thanksgiving I’ll be 23 years out from that horrific holiday season I spent being diagnosed and treated for breast cancer. The first few years I walked or ran in “Pink” fundraisers, only to find out later that the companies organizing the events were pulling in huge profits. I wore pink ribbons or related products, only to discover that in some cases only a minor percentage of the profits went to anything breast cancer related.
I’m grateful for awareness that allowed me and other early diagnosis patients (AKA “Bosom Buddies”) to live full and long lives post-cancer, but I’m not buying any pink products. If I want to give money to raise awareness or research I’ll give it directly to the providers.
Katy’s story reveals the subtle way companies use breast cancer to promote the very products that contain chemicals linked to to cancer. They don’t do it maliciously…at least I hope not. But, as my wise spouse often points out, corporations don’t have a soul. They have no moral compass to guide their decisions. The bottom-line is…the bottom-line. Morals and ethics are a side-note at best and most often not even a part of the conversations about how to do business.
While companies that use the “Think Pink” slogan to sell pink hats, shoes, shirts and other products may give some or all of the profits to breast cancer research and advocacy, the companies do it for their own sake as much as for those of us impacted by the disease. Certainly the decision to give breast cancer patients products full of toxic chemicals linked to the disease wasn’t done with morality or justice as the bottom-line.
I’ll be celebrating life with my bosom buddies at our annual ThanksLiving party next month. And we’ll be serving as much organic, close to nature food and drink as available. After 23 years I am still careful to eat organic and use personal care products with as few human created chemicals as possible. I’m convinced that all the pesticides in the foods I ate during puberty played a role in activating cancer. That’s why I support Breast Cancer Action’s work in the world. They focus much of their effort toward awareness of the role environmental toxins play in the onset of breast cancer – something the tradition medical industry refuses to address.
As Katy’s story exemplifies, if companies really had her welfare in mind, they’d do something other than provide free products that contain chemicals that interrupt the effectiveness of the medication she’s taking to prevent reoccurrance. And, if they really had the interests of women at risk or living with breast cancer, they’d invest all the time, money and energy spent on developing pink promotional products toward direct services for those in need rather than pocket a portion for themselves.
To join me and Breast Cancer Action in telling the Personal Care Products Council and the American Cancer Society to eliminate the use of toxic chemicals in personal care products please sign send a letter.
Thanks for joining me in this effort to stop the abuse of all the good being doing through breast cancer awareness! Let’s “Think Pink” but do so in a conscious and ethical way!
A young adult friend spoke with me last week about her struggle to embody her sexuality. In her late 20’s and single, she’s part of the fall-out from the “purity culture” that advocates virginity and emotional purity before marriage. She’s also part of a movement to find a better way to support healthy sexual development in church communities. After our conversation she referred me to a blog that gives voice to the inner dissonance I hear from many women and men raised in purity culture.
That interaction was on my mind when an op-ed response to the FDA’s recent approval of “pink Viagra” appeared on Sunday. In spite of significant controversy surrounding its’ safety and efficacy, flibanserin is the first drug approved to treat low desire disorders in pre-menopausal women. The author Emily Nagoski holds a doctorate in health behavior and describes herself as a “science-driven sex educator.” She calls the science behind the drug outdated and invalid. Distinguishing between spontaneous desire (which is not essential for sexual satisfaction or well-being) and responsive desire which emerges in anticipation of pleasure, she notes that “responsive desire isn’t worse than spontaneous desire, it’s just different.”
As a post-menopausal women with history of fairly robust spontaneous desire, I get the difference! Most often I operate on responsive desire these days. But just because my libido isn’t as strong as it used to be doesn’t mean I’m disordered or that I am any less in love with my husband than I used to be. It’s biology. It’s life circumstances. It’s 26 years of doing life together with freedom to have sex anytime we want. And, many other factors that come into play over the normal life cycle of those of us whose abundance of resources allow us to worry about having less sex or less dramatic orgasms than we used too!
Yet the pharmaceutical model doesn’t take those psycho-social-spiritual factors into consideration when looking for an answer to our multi-layered sexual, mental and emotional “problems.” Like the anxiety and depression that the drug industry would have us rush to diagnose and treat with medications, so-called problems of “low” desire may be manifestations of disordered lifestyles and distorted values about sexuality and intimacy. We live in a culture where we use excessive amounts of caffeine and sugar to compensate for sleep deprivation and then over-the-counter products and alcohol to help us wind back down. Much commercially produced food is nutritionally deficient. We over-work and over-spend. Is it any wonder we get to bed at night and lack spontaneous desire?
Moreover, the fact that hoards of middle-aged women helped make Fifty Shades of Grey a bestseller and box office hit is clear evidence to me that our cultural values about sexuality and intimacy have landed in the trash heap! If sadism and masochism are what it takes to get us turned on, we’ve certainly lost our way as to how to be sexually vibrant and loving human beings.
Ironically, the very teachings meant to “safeguard” the virginity of young people in purity culture can contribute to later problems with desire. As another young woman told me, “Sexual desire was just as bad as sexual activities. You were supposed to suppress it until you married. Then, it would somehow spontaneously emerge again.”
Rachel (who tells it like it is in her blog) is trying to ‘rid herself’ of purity culture thinking, but she hasn’t found anything concrete to replace it. Here’s how she describes her struggle:
Evangelical Christianity made it really easy to know what was right and wrong. It was easy to know when I was supposed to feel guilty (most of the time). I never really had to think about what I wanted in regards to sex because all that mattered was what the Bible said. And now I have to constantly question, “How do I feel about this? Will I regret this? Does it matter that I don’t know him that well, don’t like him that much, don’t think this will lead anywhere? If he does this, should I do that? Because I want to? Because he wants me to? Because it’s expected? Because I’m drunk? Should I do anything when I’m drunk? What is this saying about me? Does this say anything? Am I saying yes because I am horny or because I want to be nice? Will this change our relationship? Do I care? When is it okay to leave?”
And those questions are exhausting.
Yet those are the very kind of questions we ought to be helping our children consider from the first time they fondle their genitals in public or ask questions about sexuality that make parents uncomfortable. Not these exact questions, but similar ones that are appropriate for the challenges of their developmental stage.
Children and teens need to be empowered with discernment skills to access inner guidance. Not just about sexuality, but about all the moral challenges of life that if they choose to live with open hearts and minds, they will inevitably face. They need to sense, feel and think about their sexuality throughout the developmental cycle and make choices each day about what to do with sexual pleasure they’ll naturally feel if not repressed. They need to be equipped to discern the difference between healthy self-exploration and release of sexual energy via masturbation and self-pleasuring that is compensatory or otherwise unhealthy. They need us to help them consider the potential consequences of getting emotionally or physically intimate before their psychologically or otherwise ready to commit. And so much more.
They need us to help them learn to think and discern God’s path for them in a complex world where black and white answers are insufficient for many of the challenges they’ll face.
Ironically, the best book I ever came across for working with teen sexuality went out of print because the Christian publishers didn’t want to acknowledge teens might be sexually active! Thankfully, you can still pick up a copy of Judy and Jack Balsick’s Raging Hormones: what to do when you suspect your teen might be sexually active on Amazon.
Thanks be to God for my young friend, Rachelwhotellsitlikeitis, and others like them. May God’s grace show them a better way to pass on to the next generations.
In the spirit of full self-disclosure, I’ve known and loved several current and former staff members at Reason’s Treatment Center. But that’s not the only reason they are my first choice for adult intensive eating disorder treatment. Their philosophy aligns with my own: spiritually centered and focused on helping patients understand the deeper reasons for their symptom and change their relationship with food and their bodies.
They help each patient find their own meaning and path to recovery, integrating evidenced based treatments with experiential interventions based in depth psychology. Let them tell you more:
Degenerative disc disease (DDD) is a common and natural part of aging. If we live long enough, normal wear-and-tear breaks down the shock-absorbing discs between the bones in the spine. Symptoms of disease are more likely in people who smoke, perform heavy physical labor or are obese. Although it’s not completely avoidable, we can minimize the process by building strong core, abdominal and back muscles, maintaining good posture and avoiding lifting heavy objects.
Ironically, lifting heavy objects is often a central part of weight training. CrossFit is the latest example of a fitness program that relies on heavy lifting to build muscular strength. It’s been called “the world’s fastest growing athletic specialty.” And it’s also been identified by doctors, physical therapists and rival fitness professionals as one of the most potentially debilitating forms of training.
I can’t attribute my DDD to any one training routine. But I’m pretty sure that years of mildly compulsive exercise didn’t help!
My recent ventures into weight training weren’t extreme. I kept my dumbbells light, listened to my body and adjusted poses with support from my trainer. But my DDD (diagnosed 20+ years ago) coupled with an undiagnosed osteoarthritis in my hips, lead to increasingly stiff and sore lower body.
I landed at Optimal Performance Systems – an alternative to traditional physical therapy and training. Their corrective movement therapy and vitality program has loosened up my hips in ways that yoga and traditional stretching had been exacerbating. And it’s deepened my commitment to helping myself and others focus on holistic health. The OPS motto says it all: “Exercise is optional. Movement is mandatory.”
I got back on my bike this weekend for Ciclavia Pasadena. While I loved it, I also realized I need to get a new set of wheels if I want to do any significant cycling. I’ll be giving up my old faithful road bike and the spine jarring mountain biking my husband and I used to love. But, I hope to find a way to keep enjoying the freedom and joy of riding my bike without further compromising my spine or hips.
When expected changes of aging or unanticipated challenges of injuries and illnesses arrive, we need to adjust. Ultimately, it doesn’t take heavy lifting to maintain functional levels of strength, flexibility and balance. Of course, if I ever need to move a large boulder or lift a car, I’m screwed!
At this point in my journey, heavy lifting is optional. But bending over to harvest zucchini and sweet peas from my garden is essential. I think I’ll choose the veggies and flowers!
Take a break from busy! Make space in your life to deepen your connection to God’s love while learning to recognize and release physical manifestations of stress in your body.
Join me at Hollywood Presbyterian Church on Saturday, April 25th from 9 a.m. – 1 p.m. for a time of praying, reflecting, mindful movement, art making and mindful lunch.
Only $20 with continental breakfast, lunch and childcare provided.
Download brochure with details.
It’s 80 degrees here in Southern California today. My morning clients all canceled and the Occidental College pool up the street is open for laps. But there’s some nasty bugs going around. I had a coughing little boy in my home Tuesday. Seems everyone I’ve encountered this week is getting over something. I’m running at about 85% optimal energy level and last night my challenged hip was achy. Hmmmm….
To swim or not to swim? Here’s what I decided about listening to the wisdom of my body!
My senses rejoice in the sights and sounds of this dark, wet morning. Raindrops dripping from naked tree branches, birds chirping as they hop through glistening bushes, white ceiling of clouds softening the rumble and clanking of trash trucks rolling up and down the street.
“Around me the trees stir in their leaves and call out, ‘Stay awhile.’ The light flows from their branches.”
Mary Oliver’s images in “When I am Among the Trees” sank deep into me years ago. Her words resurface frequently–reminding me of the unhurried rhythm of God’s grace I long to embody.
“I am so distant from the hope of myself, in which I have goodness, and discernment, and never hurry through the world…”
Trees, bushes and birds instinctively follow their own rhythm. Unlike me, they live in alignment with their natural pace and entrust their blossoming to their Creator.
Long a significant symbol for me, I’m surprised to notice we have four trees gracing our living space.
Guests at our annual open house a few weeks ago dressed our ThanksLiving tree with gratitude lists.
A living Christmas tree and a rosemary “tree” arrived as gifts from guests. And we carried our baby Christmas tree home from our local nursery on Saturday.
As I move through the busyness of the next ten days I don’t want to forget the message of the trees:
“…You too have come into the world to do this, to easy, be filled with light, and to shine.”
May the unhurried rhythm that comes without effort to the trees, bushes and birds grow in those of us who aspire to entrust our lives to the care of the Light of the world who came to enlighten everyone and empower us to go easy, be filled with light and shine.
For the full text of Mary Oliver’s poem, see her anthology Thirst.
Our guest blogger today is Vivian Mabuni. She is the author of Warrior in Pink: A Story of Cancer, Community and the God Who Comforts. October also marks five years since she finished active treatment for breast cancer. Thanks be to God! I’m delighted to be part of the ever growing fellowship of women (and a few men) living vibrant and purposeful lives post-breast cancer. Though not a club any of us would have signed up for, I must say we are a very remarkable group and I’m delighted to share a bit of her story today.
From Warrior in Pink by Vivian Mubani
When I finally made it home, I headed straight to our bedroom. I lay on the bed, pulled the covers over me, and closed my eyes. I tried to rest, but my mind couldn’t settle. My prayer in the food court about letting people in came to mind. I found myself at the same crossroads of deciding whether to muster up self-sufficient strength and go all Christian Rambo—just me and Jesus—or take the braver route to open my heart and let people into my fear. My Asian heritage and cultural value of “don’t rock the boat” or “the nail that sticks out gets hammered down” amplified my struggle of not wanting to bother people with my problems. I saw this dynamic played out over and over with my family and my Asian friends. One friend tweaked her back so badly she could barely walk. We had planned to have people over for a luncheon. I suggested we order out for pizza so she could rest.
“Oh no, it’s okay. I’ll be fine.”
“No, seriously, we can cancel the whole thing or have someone bring the food. You can barely move!”
But instead of letting others help, I watched her push through the pain, and she hosted a small army in her house with a smile on her face. It was dishonorable and shameful to put people out or bring attention to themselves. I imagined the Asian Martha Stewart had similar thoughts. She ended up deciding against burdening others with her emotional struggles. I did not want my story to end like hers.
Transparency is the willingness to share about difficulties one has undergone after the fact. Vulnerability is sharing difficulties raw, in real-time, without the lesson-learned end of the story. I was comfort- able with transparency. Mostly.
Vulnerability? Not so much.
–Excerpt from chapter 1: we, us (x5) Warrior In Pink
The excerpt I (Vivian) share here reveals a common struggle among people—the idea of not wanting to inconvenience others, our tendency to isolate when faced with difficulties, the myth that “Just me and Jesus is enough.” For Christian women, and Asian American women leaders in particular, the tendency to be the strong one is underscored because of learned faith and cultural values.
My strong encouragement for all of us is YES, lean into God, but also let others in.
After my cancer battle I read the Bible with new lenses. Verses I thought were familiar became more meaningful after experiencing true community.
“Therefore, since WE have so great a cloud of witnesses surrounding US, let US also lay aside every encumbrance and the sin which so easily entangles US, and let US run with endurance the race that is set before US.” (Hebrews 12:1 NASB)
God designed you and me to live in close intimate connection with Him and with others. Learning to trust Him and to trust others is a worthwhile lifelong endeavor.
How are you doing in the area of vulnerability?
Thank you Vivian for sharing your life and words of encouragement with us today. May God continue to use you to empower and support others in deepening intimacy with God and each other.
Vivian and her husband Darrin work with Epic Movement, the Asian American ministry of Cru. Vivian is a mom of three kids and a cancer survivor. She is part of a group of women writers called the Redbud Writers Guild. She blogs regularly. Warrior in Pink was published in April and is her first book. If you like what you read here, please pick up a Kindle or paper copy of your own. I just downloaded mine!
Subscribe to Vivian’s blog for regular words of wisdom and encouragement.